I forgot to give an update after Damon's appt on Monday, sorry! Dr Tong said his heart looked good. His sats were in the low 80's, right where they need to be. His aorta looked good on the echo. He did show a difference in his blood pressure between his arm and his leg which could suggest a narrowing in his aorta, but they didn't see anything on the echo. He did grow 2 centimeters taller, but he lost a 1/2 pound which is not good. Dr Tong said he is going to send the latest test stuff up to Dr Gandhi and see what he has to say about him not gaining weight. He hopefully will be calling us back in a few days to let us know where we go from here. I asked him what he would do if the decision was up to him and he said he would probably go ahead and do his heart cath since he will have to do it anyway before the last surgery. Even if his surgery isn't until next spring or summer, they could still use this one so he'll only have to have one. He said that since all the tests came back fine w/ his heart but he still isn't gaining weight, a closer look at the heart will show if everything is truly fine.

So we'll probably be going up to St Louis soon, although we can't really say when. We'll keep you updated, I promise! Talk to you all soon. Be praying please.

Sarah