Damon had an appt w/ Dr Tong today and it went well. He told us that everything looks the same on his echo and his EKG. His sats were a tad lower than last time (which is a normal thing to happen and they were only 83% which is still a good number) and the gradient on his aortic arch was a little higher.
Here's an explanation of what that means. Everyone has an aorta, the big vessel that comes out of your heart on the left side that carries your blood out to your body. Damon's was teeny tiny when he was born (part of the HLHS defect) and it had to be rebuilt in his first surgery. There is one spot on his aorta that kept getting narrow so it's been ballooned during a heart cath 5 times to stretch it out. The gradient is a number that tells how fast the blood is flowing through that spot. If the number is low that means that the spot is wide open allowing a lot of blood to flow through at a slow pace. If the number is higher that means it's getting narrower and the blood doesn't have as much room to flow through so it's moving faster. Think of it as a river. When the river is wide, the water is moving slowly. But when the river narrows and the water only has a small area to get through, it moves much faster.
A narrow spot on his aorta is not good, but not to worry. When we first got there they took his blood pressure on his leg. It was normal. After Dr Tong saw the echo he had them retake his blood pressure on his arm. He said if the blood pressure was higher on his arm, then it could mean that his aorta is getting narrow again. But when the blood pressure machine was finished squeezing, his arm blood pressure was lower than in his leg. So all is well. Dr Tong said he would note it in the chart and check it next time we see him in August.
Maybe I should have saved you all that confusion and just said his appt went fine, but at least now you have learned something. Talk to you all later.
Sarah