Jeremy and I both are on Facebook quite a bit. He found a HLHS support group on there with a lot of people to talk to and get info from. I don't so much feel like I need support but there are some young people that are members that actually have HLHS, like in their 20's. So I'm really interested to talk to them, I have so many questions about what life has been like for them. That really is the unknown factor for all these kids; the future. So I'll keep you posted on what we find out and who we meet there. Talk to you all later.
Sarah
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About Me
- Cochran Family
- CJ, MO, United States
- Damon was born on Nov 16, 2006 in St. Louis, MO. He has a congenital heart defect called Hypoplastic Left Heart Syndrome. Damon has had 2 of the 3 surgeries he will need to repair his heart. We glorify God for all he has done for Damon so far and will continue to do. God bless all of you who check this site; we love you so much and thank you for your prayers and support.
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McDonald's Cheeseburgers
Barney
Drums
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1 comments:
Hello! I just wanted to introduce myself. I am Becki & my son London was born with HLHS. He was born July 28, 2000. He has had 4 open heart surgeries, his Fontan was on 8/2/02. He is doing great! Your son is beautiful & so is your family! You can look me up on Facebook if you'd like. Rebecca Ann Mobley. Also his website is www.londonsheart.wordpress.com
Love,
Becki
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